Thursday, January 12, 2012

Scattered Thoughts - Completely Random With No Answers, Nothing Profound

It's odd to sit around for months; thinking about how your life has changed - what you've experienced up to a certain seminal event, trying to predict how the course of your life has been altered - what your limitations are, how should you change your life now, should you at all - are you a different person than before, the same...

Faced with carrying something that could cause the end of your life a year from now or fifty, it's odd to have a REAL optional answer to the question - how am I going to die?

I think a lot of people, when contemplating the answer to such a question; 1) feel terrified that they have allowed the thought to cross their stream of conscience, 2) feel that slight quiver of fear that they do not have that faintest clue of what the future holds, not knowing when it will all end.

Is it healthy to think in such a way - I see no problem with it, contemplating one's own mortality should be a reminder that you are alive, here and now - you can't have the sweet without the bitter... (I guess).

Cliche as it is, the majority of people seem to drift through life not experiencing it as a whole; they ignore the little things, take things for granted, continually push goals and plans down the "road of life" so that "future me" can accomplish them - I've been guilty as well, still am...

However, one thing that has occurred, or at least been further cemented, is that when I think about my past - who I have become - what I have done;  I have no regrets, this is the life I have lived - the ONE life I have to live, there is no point in worrying about past "mistakes" - everything to this point has made me who I am - why even add this statement, I don't know...

To be honest, I am sometimes not sure how "cyrus" has changed me - most often it just seems like another event in my life that I will experience and move on from, sometimes it feels drastically different - sometimes it feels like an annoyance, just delaying the life I want to live - the person I want to become. Maybe that's a trap I should avoid, take everything in now - appreciate each moment, but that seems trite. Why would I want to appreciate the moments where I have been miserable - because I knew I was "alive"?  I want to appreciate the moments where I have accomplished something - the moments where I have made a positive difference in someone's life.

I've been avoiding this blog for weeks - sometimes for medical reasons, (hard to type with double vision), sometimes because I couldn't think of a way to share the humor of the situation in a way that was funny to anyone but myself, (sometimes I got a little morbid with my jokes), sometimes because I felt like there was some pressure for me to write some type of deep meaningful prose - instead of aimlessly typing like I am now, no structure - just a river of thought flowing turbulently from my fingertips.

I named my tumor "cyrus" because it seemed easier for people to deal with than the word "cancer"... something I ended up stopping, transitioning to the habit of reiterating out loud "I have cancer"; so people would get used to the idea - in reflection it's first perplexing, the visceral reaction people can have to that phrase - they don't like you to say it, I think it's because you are reminding them of their own mortality - doing so directly in their face, but you have to say it - it doesn't seem real to the individual either at first, I needed to say it out loud, those around me needed to hear it - we all needed to accept it together.

Of course such acceptance often leads to the rather banal "rah rah" B.S. - I appreciate the support and kind words, the empathy - sometimes the sympathy - but I am not so much a fan of the cheerleading - I accept it, because I know that is how people like express their support for me - but if I hear another person tell me to "kick its ass" it will be too soon... I'm just here for the ride like everyone else - I guess I do my part by following orders, but it's the doctors who are doing the "ass kicking," (and they're doing a good job I will add) - I don't feel as if I am "fighting" cancer, I am enduring cancer - and maybe that is why it has gone rather swimmingly up to this point; I don't feel as if I am in a fight, I'm not revved up with animosity or angst all the time, (yes, I have my moments), but rather I am taking the approach, "it is what it is - no use fretting, just deal with it and move on" - that doesn't mean I am not immune to the annoyances it provides, just saying I have never felt like it was "me" against "cancer".

Right now I am supposed to be in a period of normalcy - I have healed enough to begin radiation, I have healed enough that I can resume "normal physical activity". But I don't feel "normal", I am A LOT more physically weak than I was before; the anatomy of my head and face has been altered - the sensation of blood rushing to my head causes pain - what am I supposed to do with myself? Sometimes I am not sure how I feel physically - if I feel bad or not, sometimes it is just weird...

It feels as if the insinuation is "well, it seems like physically, the damage we did to you is repaired - we've had you do NOTHING but sit around for months, now we want you to immediately return to normal life" - and people that hear that feel the same - but I don't feel like I can just up and go back to doing everything the same - I am not sure I want to yet, somethings seem too trivial - somethings seem too momentous ... And that's what leads to the questions at the top and my rambling for fifteen minutes... I don't have any answers.

6 comments:

  1. I am not going to cheerlead,but all I can say is that I have had those same feelings. If anything Cancer helped me realize that I am stronger than I thought and so are you;) If you need me, I am here and just keep on living your bad ass life Kise! We were always connected somehow we just did not know how! Love ya bunches. Boston - here you come!

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  2. All very well said!! I love it...the enduring is apt description. You got through the auto pilot phase and are now able to see with some perspective....more to come but you are over the biggest hump which many be in many ways simply acknowledging the news/changes/effects are you are above. If it is necessary, in Boston/MGH there are some support groups I found worthwhile with others going thru similar things. Any questions just ask..Boston is a great city and the treatment will seal the deal : )

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  3. Daily I ponder about, "future me" and make a mental list of things that I want to start looking into or getting on with. Then I get dressed and go to work and do the same the next day.........I'm glad I'm not the only one who has a future self doing amazing things down an awesomely exciting path filled with travel, education, love, and life lessons. I appreciate your ramblings and hope as you put your thoughts together, you reel in your future self closer to the present as I hope to do as well. I hope your strength builds and stay warm in Boston. Hope to read more from you soon!

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  4. Good to hear from you again!

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  5. It is really hard to come to grips with the fact that your child has cancer, much more so I feel than if it were me with cancer. What do you say? What do you do? All I know to do is to support and encourage and pray for healing and good riddance to the cancer. My background, influenced tremendously by your grandmother,tells me to also ask for prayer from as many others as I can. Hundreds of Millions of people around the world believe in prayer. We can't all be wrong I feel so I do it. I have asked hundreds and they have asked hundreds more so that I believe that there are literally thousands of people around this earth on several continents that pray for you. Some pray every day. One prayed for you from 4 am the day of your first surgery for hours in her basement. She prayed everyday for you I am told till the day she died and has since passed away.Others tell me that they still pray for you daily.
    I believe that prayer helps if in no other way than to get the "prayer" of the prayer to come to grips with the situation being prayed about. I also believe prayers answered many times as we request, but not always. I do not know why.

    You are a good man Ryan, and except for the apparent leftover notocord cells that went haywire, you have always been generally in excellent health. I believe you are in as good of physical health now that is possible for a man who has undergone three major surgeries in his head in a matter of just a few weeks!!! You are exercising again to ward fully restored physical health, and I hope that you are back on track to follow your goal of being a doctor. That I feel is your chosen destiny. A destiny of service to your fellow humans. You are a compassionate man for the individuals of the human race with knowledge and personal life experiences at your young age well beyond that of most people about so many things.

    All of my friends and some of yours strongly believe in you and that your experience in dealing with your rare cancerous condition will make you such a wonderful and compassionate Doctor.
    My wish for you is for you to be that man that you have dreamed about for years now. You have a really good start on the plan and people(friends and family and faculty) believe in you!
    We can't control everything that affects our lives, nor the lives of others. But we can control what we can be, and we can choose how to react to the events that happen with both our consent and without our consent. That's what makes us human.You are strong Ryan.
    You are blessed Ryan, with many talents, some of which you have been "given", and some that you have developed on your own.
    I wish for you to chose the course you will follow for the rest of your life. A life or service to others of our human race is a very noble and selfless one and there are many paths to do that.
    Chose wisely and for whatever you chose, know that you will always have the undying love and support of your Father.---Dad

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  6. Ryan,
    Thanks for the post. I am also 29 with the same "condition" and have just finished my first surgery and am about to have round two and radiation after that. I found your blog Googling around. Glad to see that there's "real" people out there and not just a bunch of pictures from medical books. I really relate to this post for sure. Thanks for putting your thoughts out there, I'm sure I'm not the only one its helped. Keep it up.

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